When a loved one is diagnosed with dementia, it affects the whole family. Often, one person takes on the bulk of the responsibility, but dementia care is not a one-person job. Involving siblings and extended family members in a thoughtful and structured way can ease the pressure, reduce misunderstandings, and create a stronger support system for everyone involved.
In this guide, we’ll cover practical steps on how to involve siblings and family in dementia care, from communication strategies to dividing responsibilities and navigating emotional dynamics.
- Start with Open, Honest Communication
One of the most important steps is starting the conversation early. As soon as a dementia diagnosis is confirmed, gather your family to discuss what it means and how everyone can help.
- Schedule a family meeting (in person or virtually)
- Share medical updates and what to expect as dementia progresses
- Be honest about the emotional and physical toll of caring
- Use a calm, non-judgmental tone to encourage openness
Tip: Keep notes from each meeting and circulate a summary to avoid miscommunication.
- Define Roles and Set Realistic Expectations
Not every family member can do the same things—but everyone can do something.
Start by assessing what’s needed:
- Day-to-day care (e.g. medication, meals, personal care)
- Emotional support and companionship
- Transport to appointments
- Managing finances or legal affairs
- Respite cover or taking breaks for the main carer
Then assign responsibilities based on skills, availability, and willingness. Someone might be great at admin but less comfortable with hands-on care. That’s OK.
Tool: Create a shared rota or care calendar using apps like Google Calendar or CaringBridge.
- Be Mindful of Family Dynamics
Caring for a parent or partner with dementia can surface old tensions between siblings. It’s important to acknowledge this and try to stay focused on what’s best for your loved one.
- Avoid blame or guilt-tripping family members
- Be aware that everyone processes a diagnosis differently
- If needed, bring in a neutral third party (e.g. social worker, counsellor) to mediate
Remember: The goal is cooperation, not perfection.
- Keep Everyone in the Loop
Consistent updates help family members feel connected and informed—even if they live far away or can’t contribute regularly.
- Create a private WhatsApp group or email thread for updates
- Share changes in routine, health, or behaviour
- Use video calls to help distant relatives stay engaged with your loved one
This also reduces the burden on the primary carer, who may otherwise feel isolated or overwhelmed.
- Plan for the Future, Together
As dementia progresses, needs will change. Planning ahead ensures everyone understands your loved one’s wishes and helps prevent crisis decisions.
Together, discuss:
- Long-term care options (homecare, live-in care, residential care)
- Legal matters like Power of Attorney or Advance Directives
- Financial planning and available funding or benefits
Bonus Tip: Involve your loved one in decisions for as long as possible—they have a right to shape their care.
- Recognise and Support the Primary Carer
Often, one sibling becomes the main caregiver. It’s vital they feel supported and not taken for granted.
Ways to help include:
- Offering regular respite (even a few hours makes a difference)
- Handling errands, admin or weekly phone check-ins
- Expressing appreciation—it goes a long way
If you’re the main carer, be honest about what you can manage and when you need help. Burnout helps no one.
- Consider Professional Support When Needed
Sometimes, family support alone isn’t enough. That’s where professional services like homecare or live-in care can make a real difference.
At Trinity Homecare, we provide tailored dementia care that works alongside families—not instead of them. Whether it’s a few hours of visiting care or round-the-clock live-in support, we’re here to help your loved one stay safe and well at home.
Learn more about our dementia care services [insert internal link].
Summary: Key Takeaways
- Start conversations early and communicate clearly
- Define roles based on individual strengths
- Stay united despite emotional challenges
- Keep everyone updated, near or far
- Plan ahead with compassion and clarity
- Don’t hesitate to ask for professional help
By working together, families can create a more sustainable and compassionate care environment—one where everyone feels included, valued and supported.
Need Help Navigating Dementia Care?
Download our free resources or talk to our team about how Trinity Homecare can support your family.
