How to Cope With Denial in Dementia

Coping with denial in dementia can be one of the most challenging aspects of caring for someone with the condition. Denial is a natural response that often occurs when people fail to recognise the symptoms of dementia or refuse to accept their diagnosis. This can make it difficult to provide the necessary practical and emotional care and support.

However, approaching denial with patience, understanding and empathy is key to maintaining a positive relationship and ensuring the person receives the support they need. This guide explores how carers and loved ones can cope with denial in dementia while offering the best possible care.

Understanding denial in dementia

It can be frustrating and upsetting when a loved one refuses to acknowledge or accept their dementia diagnosis. This can be especially difficult when they seem unwilling to talk about their struggles or explain the changes they are going through. Many people with dementia, for example, may avoid discussing their condition with doctors, carers or family members. However, it’s important to recognise that denial isn’t a deliberate act – it often comes from fear or confusion, and it can be managed with understanding and the right approach.

While denial can make it harder to provide the care your loved one needs, there are still ways to help them. Supporting them in a way that respects their emotions can make it easier for them to cope with the changes they are experiencing.

Tips on providing support

When a person with dementia is in denial about their condition, it can be difficult to know how to respond. Understanding how to support them through this process while respecting their feelings is key to helping them cope with the changes.

Below are some tips that can guide you in providing the right kind of support:

1. Understand that denial is not deliberate

Denial often comes from fear or anxiety rather than a deliberate choice to reject help. It’s important to recognise that this is a natural response and not to take it personally. By understanding this, you can approach the situation with more compassion and patience.

2. Give the person time to adapt

Adjusting to the reality of dementia takes time. It’s crucial to give your loved one space to process their condition at their own pace. Avoid pushing the issue too hard, and instead, gently revisit it when they seem ready to talk.

3. Focus on feelings, not the diagnosis

When someone is in denial, it’s more effective to talk about their feelings rather than directly addressing their diagnosis. If they express frustration, anxiety or confusion about certain symptoms, acknowledge these emotions. This creates a space where they feel heard, which may encourage further communication.

4. Use gentle and reassuring language

When discussing their condition or any help they may need, use soft, non-confrontational language. Phrasing like “I’m here to support you” or “We can take it one step at a time” can make them feel less defensive and more open to accepting help.

5. Offer support without pushing the diagnosis

Avoid confronting the person directly or insisting they accept their condition. Pushing too hard can make them feel pressured and resistant. Instead, focus on offering practical support for specific needs, such as assistance with daily tasks or making their environment more comfortable.

6. Be patient and avoid getting frustrated

Dealing with denial can be frustrating, but it’s important to remain calm. Showing signs of stress or frustration can make the situation more difficult for both of you. Take a step back when needed and continue offering gentle reassurance.

7. Respect their wishes

If your loved one doesn’t want to use terms like ‘dementia’ or ‘Alzheimer’s,’ respect their preference. Instead, focus on the changes they’ve noticed or the problems they’re experiencing. This can open the door for conversation without making them feel overwhelmed by their diagnosis.

Support for family and carers when a person is in denial

Caring for a loved one with dementia can be incredibly challenging, especially when they are in denial or lack insight into their condition. As a family member or carer, you may feel frustrated when the person you’re caring for doesn’t acknowledge their diagnosis.

Here are some tips for caregivers and family members:

Think about it from the person’s perspective

It can be helpful to consider the situation from the perspective of the person with dementia. If they are in denial, they may not see any issues with their memory or behaviour. To them, their reality hasn’t changed, so the pressure to accept their condition can feel overwhelming. Understanding this can help you approach the situation with more patience and empathy, and allow you to offer help in a way that feels less confronting for them.

Talking to others

It’s important to talk to others about your feelings and the challenges you are facing. Caring for someone in denial can be emotionally draining, so sharing your experiences with a trusted friend, family member or professional can provide much-needed support. You can also reach out to dementia advisers or support groups for additional guidance.

Looking after yourself

In addition to seeking support from others, it’s vital to prioritise your own well-being. Caring for someone in denial can be stressful, so taking regular breaks, maintaining a healthy lifestyle and finding time to relax are essential to prevent burnout. By looking after yourself, you’ll be better equipped to provide the care your loved one needs.

Remember, you’re not alone. There are resources available to help you manage the emotional and practical challenges of caring for someone with dementia.

Dementia care at home

At Trinity Homecare, we understand that a dementia diagnosis can be overwhelming. We offer ‘Outstanding’ rated dementia care in the comfort of your own home. Studies show that 85% of people prefer to stay in their familiar surroundings, and we’re committed to making that possible.

With professional care tailored to your loved one’s needs, we help them enjoy a happy and fulfilling life while staying at home. For more details on how Trinity Homecare can support you, explore our live-in dementia care guide and discover the compassionate care your family deserves.

Talk to us today

At Trinity Homecare, our ultimate goal is to enrich your lifestyle in the comfort and familiarity of your own home. This allows you to live the independent lifestyle that you love without the daunting thought of moving into a care home.

Call us now on 0207 183 4884 in confidence for a free no obligation quotation. If enquiring outside of our opening hours, please complete our online form and we will contact you the next day.